Skip to main content

LGBTQIA+ Advance Care Planning

LGBTQIA+ Rights and Resources

This article discusses advance care planning for the LGBTQIA+ community.
Share

Here, learn about advance care planning for the LGBTQIA+ community, including advance directives, medical power of attorney, durable power of attorney, living wills, and other options.

What is advance care planning?

Advance care planning means thinking about what medical care you’d want in an emergency. You can also think about who else you would want to be involved in your care if you cannot make your own decisions or tell others what your decisions are.

You can use legal documents called advance directives to write out your choices and make them official.

Why should I do advance care planning?

Everyone should do advance care planning, but it can be especially important for LGBTQIA+ people.

If you don’t make your own decisions or choose who you want to make decisions for you, under Texas law, the following people (in order of preference) will get to make your medical decisions:

  1. Your spouse,

  2. Your adult children,

  3. Your parents,

  4. Your next closest relative, or a clergy member or physician.

This default is fine for some people but not for others. There are many reasons LGBTQIA+ people may want to choose different supporters.

LGBTQIA+ people are less likely to be married. Without a spouse, your family would make your medical decisions. LGBTQIA+ people are also more likely to face family rejection because of their sexual orientation or gender identity. If you don’t want your family to make your medical decisions, you will need to choose someone else.

Is advance care planning still a good idea if I’m married and have a supportive family?

Even if you are married and have not been rejected by your family, there are still good reasons to do advance care planning:

  1. If you are married, it would be good to do advance care planning in case something happened to you and your spouse at the same time.

  2. Advance care planning can be good for people who may not be living near their family, like college students.

  3. The people in your life may not know your healthcare preferences or may be too worried or stressed to make the decisions you want.

What are advance directives?

Adults can use legal documents called advance directives to make their advance care planning official and legally binding. In general, your healthcare provider must follow your advance directives or try to transfer you to another provider who is willing to follow them.

There are different types of advance directives types for different types of major decisions, including:

  • Medical Power of Attorney. With a Medical Power of Attorney, you can choose someone else to make your medical decisions if you become unable to make your own. The person you choose is called your agent.
  • Hospital Visitation Authorization. Texas law doesn’t say who can visit you or go with you to the hospital. But use a Hospital Visitation Authorization to clearly state who you want to visit or support you.
  • Durable Power of Attorney. A durable power of attorney lets someone you trust handle important things for you when you cannot.
  • Directive to Physician and Family or Surrogate. Also called a living will. It lets you decide what kind of care you want at the end of your life.
  • Out-of-Hospital Do Not Resuscitate (DNR) Orders. Out-of-Hospital DNRs tell emergency medical professionals not to perform certain life-saving procedures when you are unconscious and not in the hospital.
  • Declaration for Mental Health Treatment. A legal document that lets you say what mental health care you want in the future or name someone to make decisions for you if you are in crisis and cannot decide for yourself.
  • Declaration of Guardian in Advance of Need. If someone loses the ability to make their own decisions, a probate judge can appoint a guardian to care for them, make their decisions, and manage their property. With a declaration of guardian, you can choose someone ahead of time.
  • Appointment of Agent to Control Disposition of Bodily Remains. With an Appointment of Agent to Control Disposition of Remains, you give a friend or family member the authority to make decisions about what happens to your body when you die.
  • Wills and Estate Planning. A will is a document that says who should get your property after you die. Wills can be part of estate planning, which is the process of deciding how your property will be passed on when you die.

Why are wills and estate planning important?

When you die, your property will go to other people. You can use a will to choose the people you want to receive your property. There are also many other ways to handle estate planning, some of which may help your estate avoid the probate process and save your survivors time and money.

If you don’t want your family making your medical decisions, you might not want them to inherit your property either. If you have any assets or resources, you should consider doing estate planning with an attorney.

Why is gender-affirming language important?

Transgender, nonbinary, and other gender-expansive people may want to take additional steps when doing advance care planning to make sure that their gender identity is recognized and respected. You may consider adding language to your advance directives asking others to:

  • Call you by your chosen name (even if you haven’t legally changed your name),
  • Use your correct pronouns,
  • Maintain your appearance the way you choose, or
  • House or room you the same way as other patients of your gender identity.

Even if you’ve named agents in your advance directives who would make these choices for you, having these decisions spelled out can help your supporter be a better advocate. Remember that different types of advance directives go into effect at different times, so you may want to have gender-affirming language in multiple documents, such as a medical power of attorney, a Living Will, and an Appointment for Disposition of Bodily Remains. Contact an attorney if you need advice or want to ensure your documents are correctly prepared.

Other Patient Rights

A provider cannot require you to sign or make any advance directive. You also cannot be discriminated against for having advance directives.

Scenarios

Here are examples that show how important it can be for you to do advance care planning and choose your supporters.

Advance Care Planning Example No. 1

Patrick and Brett were life partners of over 25 years. At the time, same-sex marriage was banned in their home state of Indiana, so they were not married. Patrick’s own family refused to accept him.

While on a business trip to Georgia, Patrick had an aneurysm. He then had a stroke while he was recovering in the hospital. Both Brett and Patrick’s biological families flew to Georgia to be with him. But, since Patrick and Brett weren’t legally married, Patrick’s biological family were able to make his medical decisions—including decisions about his visitors. They banned Brett from visiting Patrick and later transferred Patrick to a nursing home in Indiana.

Brett continued trying to visit Patrick, so eventually Patrick’s biological family moved him back in to their family home. Patrick’s family later got a guardianship over him so that they could make all of Patrick’s legal decisions. Guardianship law also has a strong preference for family, so the judge appointed Patrick’s mother and father as his co-guardians, even though his mother “told Brett that if Patrick was going to return to his life with Brett after recovering from the stroke, she would prefer that he not recover at all.” The judge only scheduled Brett to have limited visiting time with Patrick.

Using advance care planning, Patrick could have chosen Brett to make his medical decisions. Patrick could also have stated his preference for a guardian in advance—making it much more likely that Brett would have been appointed his legal guardian instead.

Advance Care Planning Example No. 2
Jennifer Gable was a transgender woman who unexpectedly died from an aneurysm. But her friends were shocked when they showed up at Jennifer’s funeral, which her family was managing. Jennifer was misgendered, presented as masculine in a suit, and referred to by her old name even though she had legally changed her name. The obituary completely left out the last 10 years of Jennifer’s life when she had begun to affirm her gender identity.
This has happened to transgender people in several instances nationwide, with memorial services and death certificates not reflecting their identity. As with Patrick, this may mean that their family members had taken over their medical care as well.

Statutory Forms

Sample forms of the advance directives can be found in the following statutes:

They are also available on the Texas Health and Human Services website.

Was this helpful?
1
-1

Related Guides

  • I want to change my name.

    Name Change

    This kit has forms and instructions to legally change your name in Texas if you're 18 or older.
  • Related Articles

    Related Forms

  • Medical Power of Attorney (Dallas Bar Association)

    DBA-101

    Use to give a person the right to make medical decisions in the event of incapacity.
  • Hospital Visitation Authorization

    Use this form to designate a person (e.g., same-sex partner) as a support person and an allowed hospital visitor.
  • Durable Power of Attorney in Texas [Statutory Form]

    LHOT-PB-DPOA-100

    Use this form to name an agent to make property and financial decisions on your behalf. Notary needed.
  • Directive to Physicians for Texans

    HB-PLH-101

    A Directive to Physicians is a legal form, also known as a “Living Will.” It communicates your wishes about medical treatment at some time in the f...
  • Directive to Physicians - Living Will (Dallas Bar Association)

    DBA-102-Directive to Physicians - Living Will

    Use form to choose end-of-life medical care and treatment when condition is terminal or irreversible.
  • Advance Directive (Bilingual)

    Tell doctors and family your healthcare wishes should you become incapacitated.
  • Out of Hospital DNR - FORM

    HB-PLH-102

    Statutory form. Use to tell emergency medical professionals not to give life-saving treatment.
  • Declaration for Mental Health Treatment

    Use this form to create a psychiatric advance directive.
  • Designation of Guardian in Event of Later Incapacity or Need of Guardian (Dallas Bar Association)

    DBA-105-Designation of Guardian in Event of Later Incapacity or Need of Guardian

    Use form to name a legal guardian in case you cannot make decisions and become incapacitated.
  • Declaration of Guardian for Minor Form (Dallas Bar Association)

    DBA-106-Declaration of Guardian for Minor Form

    For parents to choose legal guardians for their children if parents die or become incapacitated.
  • Estate Planning Kit (Powers of Attorney, Advance Directive, HIPAA Authorization) - Guided Form

    Use to create durable and medical powers of attorney, advance directive, and HIPAA release